We won the appeal :) I am so so happy, the news couldn't have been any better than it was. Now we are just waiting for the slow Americans to get there slow butts moving with the new drug, so Richard can finally start to feel better soon.
Richard is still really struggling, his heart is still very high and he's still going in for his monday, wednesday and friday check up. Hoping this will be the last week of visits and really hope that next week he can start his new treatment. I am desperate for him to start this now, its just so hard and straining looking after him and just being there for him in general. No one in the world has any clue just how mentally tiring it is.
just got to keep on going and keep on smiling....
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