Love and Cancer

Love and Cancer
Showing posts with label Blood Cancer. Show all posts
Showing posts with label Blood Cancer. Show all posts

Sunday, 23 June 2013

It's a broccoli.




Richard has been in hospital for a long 12 weeks now, what seems like the longest time ever too. My mum brought him a toy broccoli, in hoping it would cheer him up. It;s done just the job and kept us amused for the rest of the day <3  He also had another Blood Transfusion today as well, hoping he will feel a bit more perkier tomorrow morning. 








          

Monday, 22 April 2013

Tiredness and strain. Cancer sucks.

I'm still really doomed that things wont  be back to normal anytime soon. I feel quite empty and spaced out. I can't help wondering if things will ever get better. I can't help to think what if we're still like this in 4 years time and things are still the same. What kind of quality of life is that giving me/us. I don't mean to sound selfish but when your poorly it's different because you simple can't do anything, where as me I can. The thing that worries me is that I'm going to be so attached to Richard's care life that I don't have my own life any more. I feel as though if he is still in the same boat in another 4 years, I wont be doing anything with my life. Would I of moved out? I'll be 31, and I'm so worried that I'm constantly missing out of things that i will regret not doing the things I've wanted too. I'm so worried about the future. I don't even have a good circle of close friends any more. In fact sometimes that's easier because they don't understand, and try to tell me it will be okay, but the truth is, No one knows he will be okay. And trying to make it all okay is the most annoying thing any one can do. People just have no idea how it's change my life and everything has changed. The longer it goes on the longer I just feel like we're just friends and I am a carer. There is hardly any bond between us any more. This cancer is draining our relationship so bad now, and again I went to visit Richard yesterday. He was too tired to talk to me but he happily sat up and chatted to nurses asking them questions. Every time I tried to encourage him to talk to me he just pulled faces so in the end I was that fed up and I went home. I'm not going to take my time out to visit him, where I have to drive an hour to get to him, queue in the massive long wait to queue in to the car park for him to annoy me like that. It's just not fair. I try not to let it bother me I really do, but it does. I get compliments off other people at how amazing I am for what I do and despite everything going on I am still smiling and yeah those people are right but with Richard it's just a totally black out world. I have my own problems going on, along side of him and he is never there to support me. I feel so lonely and am desperate to be in a loving relationship where I get all the support I should. He always seems to forget I have all the other drama going on and expects me to fully concentrate on him, but i really can't. He has become one the most selfish people I know. Even when my grandad had his accident I needed him at the other end of the line- what did he do, he went for dinner as his female friends house... It's just he never stops to think, yet always does what he wants yet when things go bad for him I have to ditch what I am doing. Its never fair and always one sided and it is making  me really miserable. I want to  be able to go out and have fun with out him digging at me or making me feel bad. I don't do anything to upset him or piss him off and yet he's moaned at me for dressing up for my sisters birthday. So typical. It's like because he emails  the nurses,  it almost makes him paranoid of what  I am  doing and picks a fight! It's so petty. I am so fed up of his selfishness. He never used to be this bad at all. He used do anything for me but now he's so grumpy and rude all the time I'm just so fed up and so sad all the while he never gives me a reason to be happy any more.

Sunday, 17 June 2012

day 25. time just keeps flying by.

can't believe its been 10 days since i last wrote about Richard's last updates. It's been such a mad manic week, i can't believe how quickly the days have flown by...


I didn't get to see Richard over last weekend. I went to spend some time with my little sister over in Northampton, along with my friend Emma. Just needed something to do and a bit of time out space. People don't realize how tiring it is, having to be in my place. Had a relaxing time, and then my sister had a jewellery party on the Sunday- was nice to kind of feel normal for a bit again. But, not one minute goes by that i don't think about Richard or his situation.

Anyway, Richard mum and brother went to visit him on Sunday as it was Janet's birthday ( rich's mum), was hoping to get over too but i was late home and i felt so tired and sick, the minute i got home i went straight to bed. Unfortunately i didn't even get to see him on Monday either as i had to take my dad to his PET Scan at Glenfield, which went all okay. Were just awaiting for the results now, i hope for gods sake its all okay. I really cant cope with this again, not yet anyway.

Good news though, Richard texted me on Monday saying he would be coming home that week, possibly Tuesday or Wednesday depending on how he is doing and how his results are. He started getting pains with his  stomach acid, because they took him off his acid tablets. they did this to try and get his stomach to near as normal as possible. something to do with the medicine kills of his friendly bacteria that he needs, if this happens it makes things worse in the long run??? yeah i don't get any of it tbh. Poor Richard though, his acid is giving him so much grief he was struggling to eat.

On Tuesday  morning. he found out that his neutrophills were 5.4, anything above 5 means fab. This means his body should be makings everything work again properly :) The doctors were then going to put him on steroids and take him off is antibiotics... he's was finally starting to show some improvements again, it was such an up lifting moment :) he was happy, you could tell it, in his voice.

Richard is also at his Graft V Host as well, this is all good. However they can only let it happen so much. If it goes over board then its not good.

During all this time, we have both also been looking for engagement rings, its been sad because we cant go shopping together to choose one, means everything will have to be done different, but that's okay. I can cope with that, it might not be my ideal dream that we all have when we grow up, but i guess this makes it extra special in away.

Found out on Tuesday morning that Richard was allowed to go home  very unexpected, i couldn't believe it. Meant in me having to do a last major car hoover so i could actually bring him home for once and for the first time. Couldn't have been more happier. So anyway, i went over to see him at normal time, helped him pack the last bits and took what seemed like the longest trip back and fourth to the car with his stuff. Anyone would think he'd just got back from holiday, seeing it all loaded up in my car. I did it though and after a long day, he finally got his tablets at 6.30 and off home we went. :)

Wednesday i was finally going to see richard at home and finally get snuggles in bed again, even though i was pretty scared like. Today was Alan's Birthday (richy's little brother) and was a litte visit from the queen in satmford, Which my gran and i went to see. Oh, she was so beautiful, had a police man standing in front of me, more to the left so was able to get a good view of the queen heading my direction. Took a guess at taking a photo and took it a tiny bit too early, but, it was take a good photo and risk not seeing her looking, or just  take a quick piccy, and make sure i see her. Which now i am glad i did, because her face was so lit up with her smile, and even though it would had made the best photo, seeing her was more important. After all, not like you get to see her everyday hey. Shen was gone before i knew it, so quickly i had to question my self to whether i had actually seen her or not. Her big smiley face is still as clear in my memory.



some how i can't save the  zoom on the photo, but when you see it, you can see her very well :) 

Spent the night at Richard's on Wednesday night, was so so nice to have him back and snuggles in bed again. I can't believe he is home, i can't believe how quickly the last 4 weeks have gone. Seemed like yesterday when it all started happening, but then in some ways, it doesn't.

Richards been on the internet and found a lovely engagement ring that we both like the design on, we've been chatting about it and decided on either sapphire or Emerald.  i love both colours so that turns out really well. Richard found a lovely jewelleries on the internet and rang them about the ring. He had an appointment with the designer on the Thursday to discuss and design the ring to fit his budget, style and ect.  Turned out that emerald isn't a very good stone, now i should have remembered this from working in a jewellery shop for a year. emerald is a really brittle stone, and breaks easily. Not suitable for my way of life, which means i would constantly have to keep taking it off, well that's not worth it for an engagement ring that should be worn all the time. 

Richard had a check up on friday, all went okay, got to go back on Monday for the next check up.Apparently it will be a long while yet before we even know if this transplant has worked or not... we just have to hope that the 3 months scan doesn't show any worse than the last scan or it's going to be very upsetting, it will mean it's not worked. It's okay, if they still see a few bits showing up as there is still plenty if time for the new cells to fight it off. So, it will be more nearer the 6 months to when we will know more. More waiting around an more gambling. He's also got to be very sensible, and not mix with too many people and do as he's told and he should be okay. He's got to go back twice a week for the time being..... 

...... 


night night. time for bed. 






Wednesday, 23 May 2012

Stem Cell Transplant Day is here. Day 0

Richards Stem Cell transplant day has finally arrived :) Been a really easy day today, poor Richard was very tired compared to yesterday so unfortunately it wasn't a fun day but we still had nice relaxing one. Arrived at the hospital at about 1.15pm, had an easy afternoon, watched an old film called Jet. Richard fell asleep whilst i tickled his head for almost the whole film. Definitely not complaining though :) to see him sleeping happily and resting is one the best things to watch when he's in there.


richy taking a nap 

Richards stem cells transplant 

Cells have come from Germany, transported by train which was interesting. They turned up just after 5.30pm ish. Transplant took place just after 6pm and took nearly two hours to go through. It's very simple really, its just like watching a blood transfusion. Simple as anything, Most people think Transplant means operation, but it actually doesn't, which is rather interesting. I learn something new every-time i go to that hospital.

I leant to day that a stem cell transplant, is more intense than a organ transplant. This is because an organ transplant is just one body organ, where as stem cell is the immune system which controls the whole body. So technically this in a whole body transplant. it so exciting really too.

Hopefully Richard should be okay for a few days, then his counts will start to drop and he will get worse before he is better. Fingers crossed he goes through it all okay.

Ill go back and visit him on friday. hoping he will still be in high spirits.


......

23 may 2012 

Monday, 28 November 2011

A new Beginning.

Today is a new begining and a new start. Richard starts the new chemo drug today. i really hope it is as good as they say it and that he starts to feel better sooner rather than later. he needs it so much. 


today is where it all begins, the long road to recovery has begun.....