Poorly Richard

Nursing my poorly Richard better, Took the day off work today to come see him. We had a horrible day of scare yesterday. It went from one minute saying they might let him home to then having him put in for a ct scan. It was a horrible day, a day of waiting and I hate that. His blood results came back with his liver not working properly, then found that his infection mark was up and got a high temperature so was then put on tablets for that. Cf scan result- after what seemed like forever, and a good several hours showed that his pancrease is inflamed but they do not know why. As far as we know that cancer hasn't got any worse and is still in the same place. Poor boy is on so much dis comfort, I've just managed to send him to sleep with some head tickling. He's nill by the mouth too, as they want to let his tummy settle but also until we find more information about what's going on. Let's just hope he doesn't have to go for an operation and is just being caused by the radiotherapy or infusion, or a combination of both. His eyes have gone all yellow as so has his face, doesn't look as bad as his eyes though. Wish I could make it all go away now.

Happy Memories // RICHARD

just adding some photos of my wonderful Richard, i just noticed this blog has a lot of writing these days and not so many photos. I think i will have to change that :) 

DONOR LYMPHOCYTE INFUSION // RICHARD

It's been some time since i have written on here again, I don't seem to know where the time goes. Saying that i am just so busy, i very rarely get to sit down and get on here.

Life has been pretty hard, i miss my grandpa like crazy, and I've been running around like a yo yo machine, I now work full time, at last, and run the farm, look after Grandma, still don't go round as much as i used to but i find it so hard with out Grandpa there. I try to spend as much time with Richard too, but as like tonight, i am missing out on snuggle times, as unfortunately was kept in at the hospital and is staying in over the weekend.

He had two lots of radiotherapy this week, yesterday (Thursday) and Today. And then having his DLI tomorrow, which is an infusion of the Cells from him Donor. Really hope this works, if this doesn't there is nothing else they can do for me. It gets scarier every time and every day. I wish it would go away. Richard has been poorly since the very beginning  i just want us to have a normal relationship now, that we have never been able to have. It's so heart breaking, we have this amazing future we want to have toegther, and i now i feel likw it's never going to happen, and that we will never get to do what we want. Life is so unfair, why does it always nig at the Nice people. Please work, pleaseee.


xxx

Christmas Nightmare. // LIFE

Just as you think the world cant get any worse, it only goes and bites me back in the bum... Once again.
It's been a rubbish week and nothing is going right, and there are just simply not enough hours of the day. Richard was submitted back in to Hospital last week, and i'll be totally honest, have no idea what happend, or am i able to recall anything. I am Just so upset over grandpa and the shock of that, plus trying ti jiggle everything else just doesn't work. I am so tired and all i want to do, is switch it all off and sleep for a day or two and charge my batteries back up. 

Good night grandpa.

My world has fallen apart, the night mare hasn't even begun and already I just want to run a way and pretend that this isn't happening, or just travel back in time so we can have some happy times again.
My poor grandpa was rushed to the hospital yesterday, he's been poorly and not been quite right for a few months but he always kept on going and kept smiling and always battled on. The past two weeks he's suddenly been getting things sorted and helping out where he could, I never thought twice about it but my dad knew.  I saw him last Friday and we went to the bank to get some of his belongings, and some money as we normally do. I recently found out that he wasn't very well on at the weekend, Which i don't understand why nothing was done about it sooner. Apparently it wouldn't have made any different as his kidneys were failing anyway.

I spent some time with him and grandma on Monday, Tuesday and Wednesday night after work. I try to go up and see them anytime, and try to keep them happy and make sure they are okay. The last time I saw grandpa talking and happy was on Wednesday. He looked really fragile and Grandma had to help him through to the lounge to sit down, I've never seen him like that before. It was heart breaking, normally Grandma is the one that needed help. However, we were all Chatting away, laughing, smiling, joking about short bread and why don't we have long bread, he sounded much better and told me he hoped there was cure. He's been having bladder//kidney problems for a while. Just over a year he was rushed to hospital and was diagnosed with one faulty kidney. This meant he was then strapped up with a bag, and after that, he did't go out much, not as much as he used too. He stopped going to the farm, and only did it on a Sunday  Slowly over time he stopped that, but i could still get him to the bank, the hospital on a Monday for his bag, and other things. He kept going, despite that he could barely see, he kept on going but then 8/9 weeks a go, he suddenly got the shakes and couldn't do much any more. He slowly went down hill but it's easier to see it now, now looking back it so much easier to see it than it was at the time. I am so glad the past year has turned out the way it has, I've spent so much time and done so much to help, i even got my own set of keys for the farm. so much has happened but I  Never ever expected that would be the last night i'd  see him alive and happy.
Yesterday he was rushed to hospital and I just thought he would be okay. I just thought he needed some fluid and some rest and that he would recover. Dad wasn't convinced and knew he wouldn't be coming home. He knew he was giving up and in the end, and he did. I don't know if that was by choice or what, part of me feels he didn't want to go, but he didn't want to suffer any more or he didn't want us to see him struggling. He had always been the man of the house, and for him to be like that was embarrassing for him.  I don't feel he was ready to go,  he just wasn't. I know he was unhappy and fed up, but he loved seeing the family and he loved my visits. I had such a giggle with him on Wednesday, joking, smiling, and i even stayed longer to help him make there dinner, made the tea and got it all ready for him. The last words i got from him were,

Thank you Amy, for everything that you do for us, we miss your visits and to go see them when ever i want,  we  like to see you  and you  always cheer us up. we are really great full for everything that you do and all your help..... thank you for the shortbread,
that's okay grandpa, i am always happy to help out and hope you feel better in the morning, hope the short breads cheer you up a bit too....

Those words will stick with me for a very long time. I just can't believe how he went down hill so quickly and so suddenly, I don't think any amount of human love was enough to save him. Even dear grandma who needs him to keep her sane.

I'll miss you dear grandpa, so much. The world will never be the same again and i can't believe i will never see or talk to you again. MY world has ended and my heart and a broken hole in it. I will always love you grandpa.

A New Beginning? ....

First of all, I am really sorry for my lack of writing recently. Life has become so hectic  now that i have two jobs and a farm to run. Richard has been doing okay, having a lot of problems with his tummy, but other wise he is doing really well.

We got the impression we were going to get his results ect before Christmas, but after seeing the top specialist on Wednesday ( November 29th), we brought his appointment early by a week as he wanted to discuss about the results, and about his tummy. It's been giving him such a hard time, he wanted it sorting out. So really, we just went over to see about that really. We came home on the high, they have reduced some more tablets but they have decided to leave the results now until the New Year. They don't want to radioactive him any more, so for now, he's been told he can start going out again and can go to the Christmas party//events we have coming up. This is just perfect, they are really pleased with him and basically said his Transplant is now 100% donor, so there is no more of Richard's stem cells left. They are all now German. He's done lucky, as his hair colour is still the same and bits so am really happy for that. The only odd thing is, is sometimes, i don't feel like its my Richard, sounds so silly i know but sometimes i feel like im holding a strangers hand? i don't know it that is possible or if i'm imaging it. But Either way, I do not like it....

We off to Harlaxton Manor on Thursday for Christmas singing, food and wine. I can not wait, i'm finally really looking forward to spending some time with me man :) and most of all having some fun again.


Amy

xxx